Víctor is a young man born with a rare genetic disorder called Sotos Syndrome. It is believed that 1 in 10,000 people in the world is affected by this disorder caused by mutations in the NSD1 gene and not inherited from any of the parents. People with this syndrome suffer from a number of conditions, such as gigantism, blindness, intellectual and motor disabilities, hearing loss, severe scoliosis, and cancer. 

This ongoing project aims to explore how resilience can take form and shape a young man’s identity construction. It also seeks to break the stigma and discrimination surrounding people with disabilities and raise awareness in Puerto Rico for inclusion in every aspect of their life, regardless of age, race, and socio-economic background.