Víctor is a young man who likes to dance, sing and post old photos of himself with friends and family on Facebook every day. He spends his days listening to his two favorite songs on Youtube and helping his mother Wanda. He talks constantly about how much he loves his family and about the places he wants to visit one day. His eyes reflect a joyful light, very characteristic of a young mind full of life.

But, life for Víctor has been anything but easy. He was born with a rare genetic disorder called Sotos Syndrome, which results in gigantism, intellectual and motor disabilities, hearing loss, blindness, and severe scoliosis.

Víctor is considered to have the knowledge skills of a 10 year-old-boy. But, when you talk with him his wiseness can impress you. He never learned how to ties his shoelaces and yet he learned how to use Facebook like every other millennial of his age.

It is believed that 1 of 10,000 people in the world is affected by this disorder caused by mutations in the NSD1 gene and not inherited from any of the parents.

In Puerto Rico, there are not that many programs to help young men with mental disabilities, instead, when they turn 18 they are at the mercy of whoever takes care of them. In Victor case, is his mother Wanda who tirelessly takes care of him and her own mother. Victor spends his days inside the house all the time, he is only allowed to go outside if someone is with him. From the outside with all these difficulties, the world of Victor seems very limited, but when you get to know him you will be surprised by how extraordinary is the world that he has created for himself. Inside his mind limitations do not exist and the world is filled with colors, music and lots of love.

Ongoing...